Patient Education for People with Parkinson's Disease and their Carers
A Manual
Preface
In 2002, the Commission of the European Union (EU) agreed to fund a research project entitled
"Patient Education in Parkinson's Disease" (QLK6-2002-02674 EduPark), which ran for
two-and-a-half years. The result of these efforts was the design and implementation of an
eight-session group education programme for people with Parkinson's disease (PD) and their
carers, developed within a European consortium. This consortium comprised research centres
in Germany, Spain, Finland, Italy, The Netherlands, Estonia and the United Kingdom.
In addition to dealing with the motor symptoms of PD, many people with PD struggle with
psychological and social effects of the disease. In fact, people at every stage of PD can be
faced with problems such as depression, anxiety, stressful social interactions, and difficulties
communicating, all of which can disrupt their lives. The ultimate goal of the consortium,
therefore, was to empower people with PD and their carers to improve their own quality of
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