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Home > Biography > Parental Memoirs > Fragile Innocence
Fragile Innocence
by Reston, James Jr
 
 
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Fragile Innocence
Fragile Innocence is the story of a child devastated by pure chance. This moving narrative of a father’s journey to understand and accept the profound changes in his daughter’s life is at once memoir, biography, mystery, and drama, all centered around one remarkable young woman who cannot talk or read or understand language, but who has touched almost everyone she has ever met.

At eighteen months Hillary Reston, a happy, healthy toddler, was struck by a remarkably high fever. On the advice of her doctor, her parents, James Reston, Jr., and Denise Leary, administered Tylenol and anxiously waited for the fever to subside. Five days later it did, but the damage was done. Over the course of the next five months their bubbly, highly verbal child was radically and irrevocably changed. Worse yet, no doctor could explain what evil and still unidentified force had stolen Hillary’s ability to speak or understand language, hurtled her into a seemingly endless cycle of seizures, destroyed her kidneys, and taken her to the very brink of death.

For her parents, discovering what had happened to their child and how to assure the quality of her life became an obsession. This quest for answers would take them from the nation’s hospitals to the office of a pioneering geneticist in Texas and the vaulted halls of the National Institutes of Health.

This very intimate story also personalizes some of the most daunting ethical issues of medicine that society faces today, including stem cell research, animal organ transplantation, diagnosis with the Human Genome Map, and reproductive and therapeutic cloning. Hillary gives these immensely complicated issues a human face, and they are pondered by Reston as a reporter, a thinker, and a father.

In Fragile Innocence author James Reston, Jr., invites us inside his family, candidly sharing the joys and sorrows of raising Hillary.


“This is a book about the first twenty-one years of a child named Hillary. It tells of her battle to live and our family’s struggle to help her survive as best we could, after an evil and still unidentified force robbed her of her language at the age of two, hurtled her into a seemingly endless cycle of brain storms, destroyed her kidneys, and took her to the very brink of death. That is the first half of the story, when life itself was at stake.” —From the Preface


From the Hardcover edition.


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Title of ebook: Fragile Innocence
ISBN: 9780307347398
parent-ISBN: 9781400082438
Publisher: Crown Publishing Group
Pages: 272
Published: 02-2006
Released online for download: 02-21-2006
Author of eBook: Reston, James Jr

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Fragile Innocence


Chapter One




[1]

The year 1981 was the end of an era in our personal lives. But we did not know yet that a much-longer, more-complicated era was about to begin. For ten years, from the moment I married that willowy, tough-minded, high-spirited, and high-cheekboned girl from the Bronx in a retrograde ceremony in the Blue Ridge Mountains, we had lived the often ecstatic, sometimes stormy, perfectly ordinary existence of two young lovers trying to solidify our union as we started our careers and our family outside Chapel Hill, North Carolina. In that decade I had published five books, two of them novels, launched my first play, and taught creative writing at the University of North Carolina. At the end of the decade, we had two children: Maeve, who arrived in 1978 as the envy of the Gerber baby advertisers, and then Devin, who came floppy-eared in 1980, as the fastest crawler in the East.

Denise is seven years my younger. In the twilight of late sixties activism we met in New York City, where together we worked in the spirit of the times at a poverty program called the Neighborhood Youth Corps. The program w ... read full excerpt from: Fragile Innocence ebook



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