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Grinyer, Anne Palliative and End of Life Care for Children and  Young People eBook

Palliative and End of Life Care for Children and Young People

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eBook Publisher: John Wiley & Sons
Imprint: Wiley

Format: ePub Encrypted (DRM)


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“Anne’s contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer.”
From the foreword by Simon Davies , CEO Teenage Cancer Trust

This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multi-disciplinary work, interagency co-operation and resource issues.

This will be essential reading for community children’s nurses, specialist palliative care teams, children’s hospices, school nurses, social workers and student nurses as well as families.

·         A comprehensive resource on end of palliative are provision for children and young adults with cancer and other life limiting illnesses

·         Timely and topical, tying in with the latest Department of Health palliative care strategy ‘Better Care: Better Lives’

·         Written in an accessible style that does not assume either detailed medical or theoretical knowledge

·         Explores palliative care provision in a range of different clinical settings including the home, hospice, and hospital

·         Provides valuable insights into the experiences of parents, children and young people

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Title of eBook: Palliative and End of Life Care for Children and Young People
Release Date: 12-21-2011
Publisher: Wiley

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Parent title Palliative and End of Life Care for...
Encrypted (DRM) Yes
SKU 9781119968313
File size 3184
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NoteExcellent navigation features are available via Adobe such as bookmarks and a quick access table of contents. Text search is easily accessible. An Adobe DRM-protected file is different than a pdf file in that it uses Adobe DRM (Digital Rights Management) technology, which authors and publishers use to protect their content from illegal online distribution and to set certain privileges such as restrictions on copying and printing.

Palliative and End of Life Care for Children and Young People


Chapter One

Palliative and End of Life Care for Children and Young Adults

The death of a child at any age and from any cause runs against the natural order (Milo 1997); indeed there is something profoundly 'wrong' about a child predeceasing its parents. As Sourkes (1977: 65) argues, the 'assumed sequence' is thrown out of order; parents who would have expected their children to care for them at the end of life instead find themselves witnessing the 'tragic absurdity' of watching their child die.

Although across the world incurable illnesses claim the lives of children on a daily basis, the culture of modern Western society tends to 'push awareness of these personal tragedies to the back of our minds' (Riches and Dawson 2000: 9). Death and illness are hidden from view in a society where most acute illness and the majority of deaths are managed out of sight in hospitals and hospices. As a result, family members engaged actively on a daily basis with the care of a child with life-threatening or life-limiting illness can feel isolated in a world hidden from view. Their struggles may remain unobserved and they can find it difficult to access the support needed for the child, siblings and their own welfare.

Benini et al. (2008) define 'life-limiting' conditions as those where a premature death is usual and these would include such conditions as Duchenne muscular dystrophy (DMD) and a variety of chromosomal disorders. However, although a 'life-threatening illness' carries a high risk of premature death, there is also a chance of the illness being cured and it is usually this term that is applied to cancer diagnoses. According to ACT

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